Autism spectrum disorder (ASD) and autism are both general terms for a group of complex disorders of brain development. These disorders are characterized, in varying degrees, by difficulties in social interaction, verbal and nonverbal communication and repetitive behaviors. They include autistic disorder, Rett syndrome, childhood disintegrative disorder, pervasive developmental disorder-not otherwise specified (PDD-NOS) and Asperger syndrome. An estimated 1 out of 54 boys and 1 in 252 girls are diagnosed with autism in the United States each year.
Jonathan and I have several friends whose children have been diagnosed. Having witnessed their diagnosis as an outsider, we’ve seen the grieving stages the parents go through as they grapple through denial, anger, bargaining, depression, then ultimately acceptance with the disorder. We are oftentimes at a loss with what to say or how to help. It’s frustrating for everyone not knowing the true cause of the disorder. It makes parents question every little thing of the child’s past, all the way to conception, which leaves parents’ minds on an eternal treadmill of questioning thoughts — which for anyone can be exhausting. What we do know about children with autism spectrum disorder is that they are each amazingly gifted and unique. We know they are loved very deeply by their friends and family, even though it may seem at times that these same family and friends are exasperated. The truth is autism is exasperating. It’s also, at times, wonderfully incredible. As our friend said of her sweet, adorable son, “He teaches us something new about ourselves and about the truly important elements of life.”
We’d love for you to take a moment to browse through the Autism Speaks website. For the month of August, Salon Khouri is donating $1 from every haircut to Autism Speaks.